Joy
Feel It to Heal It
Joy is a deep unshakeable positive emotion of elation that is unconditional and knows no limits. Joy encompasses laughter, hope, wonder, compassion, generosity, forgiveness, purpose, and kindness. Wait a minute....Joy, gratitude, wonder, awe? An article on gratitude on a cancer survival website!? Do not be afraid, this is not a space for toxic positivity, “everything happens for a reason” (fantastic, tell me the reason!). Let’s not feed into the toxic positivity machine. Cancer is an awful life-altering, life-threatening event, but what we do with the emotions that follow the diagnosis matter a great deal.
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Joy is so much deeper and more vast than simply happiness and gratification. Happiness is great, but when we just feel happiness after a good outcomes, it limits us to just those fleeting moments where we are always on the hedonistic treadmill searching for the next dopamine hit of pleasure. For example, “I can only be happy when my scan is clear and I’m done with chemotherapy.” Of course I want a clear scan! Of course I want to eat chocolate chip cookies all day long! They taste good! However, even if it isn’t clear or if my counts don’t come back up or I choose to eat kale and broccoli sprouts, I can still have joy. My joy is not contingent upon an outcome or situation. I will laugh and see the beauty in this world despite the awful circumstances of cancer, and nothing can shake that. Joy is finding that inner strength to feel peace even though life is unimaginably hard, scary, or sad, but sometimes cultivating joy takes some work.
We are very complex human beings that can feel a spectrum of emotions from minute to minute. It is hard not to fall into a downward emotional spiral when you receive a cancer diagnosis, but to quote poet and cancer survivor Mark Nepo, “To be broken is no reason to see all things as broken.” You get to choose how you see the world and how you react emotionally to situations. The duality of life is when we hold both the good and the bad; we can hold heavy emotions like anger at cancer but gratitude that its treatable. Embracing positive emotions while feeling and releasing negative emotions of guilt, anger, shape can be cathartic and healing. The catchy saying “feel it to heal it” does ring true. Expressing forgiveness and releasing the past can allow us to focus on the positives in life, get unstuck from negativity and stay in the moment.
Stress is the state of tension or worry in the face of a challenge. Responding to an acute stress is an invaluable skill (that lion is going to eat you, RUN!). However, living with and experiencing chronic stress and persistent negative emotions is bad for our bodies. Chronic stress and being constantly in fight or flight mode causes the brain to trigger the sympathetic nervous system to release norepinephrine and stimulates the hypothalamic-pituitary-adrenal axis (HPA) to release epinephrine and glucocorticoids like cortisol. These stress neurotransmitters and hormones cause increased inflammation, expression of oncogenes, cause the tumor cells to grow, spread and evade immune cells and decrease the function of the immune system.
Conversely, when we are able to feel relaxed, our body shifts into the parasympathetic state of resting, digesting, and repair. In this state, the body releases feel good hormones and neurotransmitters dopamine, serotonin, oxytocin, and endorphins which translate into lower blood pressure, heart rate, stress hormone cortisol and increased white blood cell activity (including natural killer cells) and removal of cancer cells and infections. So how can we achieve this happier state?
Stress management can increase the body’s parasympathetic nervous system response, stop the release of cortisol and boost the body’s immune system. A 10-week Cognitive Behavioral Stress Management intervention in women with breast cancer increased lymphocyte proliferation, a type of white blood cell used as a marker of immunity, compared to breast cancer survivor control not receiving stress management therapy. Additionally, natural killer cells were increased in melanoma patients practicing stress management and relaxation techniques compared to melanoma patient controls not receiving the techniques. Furthermore, the melanoma patients receiving stress management techniques showed better 5-year survival and lower recurrence rates.
Another tool to promote positive emotions, connection, and mindfulness is that of Self-Compassion, pioneered by Dr. Kristin Neff. The practice of Self-Compassion uses self-kindness in the face of challenges, reflects on our common humanity of shared suffering and then mindfully notices the emotions that arise. For example: My Dear Self, cancer is incredibly scary and not what you expected in your life. We all experience scary, unpredictable and difficult times, and I see you feeling fear and anxiety. Practicing Self-Compassion is a way to be gentle toward yourself instead of getting angry when life doesn’t turn out the way you want it to, realizing that we all encounter challenges, and then mindfully, non-judgmentally observing the thoughts and emotions that arise during these challenges. It is a beautiful practice blending kindness, humanity, and mindfulness.
Laughter and smiling have very positive effects on our bodies. Laughter increases natural killer cell activity (infection and cancer fighting cells), makes us feel less stressed and more relaxed, and enables us to be in the resting and digesting parasympathetic response instead of the fight-or-flight fear sympathetic response. Positive emotions decrease our blood pressure, heart rate and stress hormone cortisol. Physiologically, when we laugh, our vagus nerve (the super long nerve that extends from our brain to our diaphragm) is stimulated by the diaphragm bouncing up and down. The vagus nerve then signals to the brain to activate the parasympathetic nervous system to relax. One study found that just listening to audio of laughter for 5 minutes increased heart rate variability (a marker of well-being and being in a relaxed, parasympathetic state).
Gratitude is a very powerful way to embrace good emotions. When we notice and focus on the good in our life, it makes us feel better. Writing in a daily gratitude journal improves sleep and lowers blood pressure. Interestingly, expressing gratitude to others has been shown to have more benefits for the one giving the gratitude that the one receiving. Writing notes or messages of gratitude each day creates positive emotions and staves off depression.
In the words of His Holiness Dalai Lama and Archbishop Desmond Tutu in The Book of Joy, “Lasting happiness cannot be found in pursuit of any goal of achievement. It does not reside in fortune or fame. It resides only in the human mind and heart, and it is here that we hope you will find it.”
“Life isn't about waiting for the storm to pass. It's about learning how to dance in the rain.”
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- Vivian Greene
"When the ground below is shaking, my joy cannot be taken."
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- Josh Baldwin "There is Freedom"
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Action Plan
Talk to a Professional
Sometimes we can't dance, laugh and smile through everything. Fortunately, help is out there. Cancer centers and oncology providers have access to resources and referrals to psychotherapy or counseling. There are many different types of therapy: cognitive, behavioral, trauma, interpersonal, psychodynamic, psychoanalysis, humanistic, spiritual, self-compassion, movement, somatic just to name a few.
Please make sure to speak with your medical professional and if you are unable to feel joy or are feeling depressed. If you have any thoughts of hopelessness, hurting yourself or others call your medical provider immediately and the 988 Lifeline, a 24 hours a day, 7 days a week National Mental Crisis Network that provides confidential emotional support for persons in emotional distress or suicidal crisis.
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Help is available, and there's no shame in asking for help. Cancer isn't easy, don't carry it by yourself.
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Find Joy in Your Space and In Life
What sparking Joy look like in your life? Marie Kondo popularized the term "Spark Joy" in a home organizing book but it applies to so much more than your closet. Grab an object in your home, does it immediately spark joy for you? If yes, keep it! If not, thank it for its presence in your life and then throw it away or donate it. Now translate this to your life. Does your job, relationship, living situation spark joy? Time is our greatest currency, which becomes very clear after a cancer diagnosis. What you spend your time and money on reflects your value and life purpose. Make time and space in your life to "Find out who you are and do it on purpose." - Dolly Parton
Release what doesn't serve you and let it go. Embrace what supports you.
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Laughter is Medicine
Give yourself the daily prescription of laughter! Find it through your interactions through friends, movies, podcasts, or comedians.
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Stage IV breast cancer survivor Saranne Rothberg created The Comedy Cures Foundation when she discovered that laughter and joy were central to her healing and she wanted to she made it her goal to share joy, humor and hope with others diagnosed with cancer.
Laughter Yoga (yes, this is a thing!) was started in 1995 by Dr. Madan Kataria (he also established World Laughter Day on May 10th) on the premise that our body cannot distinguish between genuine or prompted laughter and smiling. The body senses any type of laughter as a joyous relaxing time to release the feel good endorphins, increase blood flow, and decrease stress cortisol. When you use facial muscles of smiling, happy chemicals like dopamine, serotonin and oxytocin are released in the brain. Furthermore, these chemicals are released if another person smiles at you too because of the effect of mirror neurons (cells in our brain that fire when we observe someone else performing an action or experiencing an event). In other words, your vibe attracts your tribe and smiling is contagious. This translates across cultures and healing practices; in the Chinese healing movement practice of Qigong, laughter and the feeling of well being from levity are mimicked by the movement “Shaking the Tree” and smiling. There are laughter clubs across the world, YouTube videos, and laughter yoga teacher trainings. Check out this Laughter Yoga TedTalk. It may be a “fake it ’til you make it” situation, but give it a try.
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Visualize Feeling Joy
Close your eyes and imagine your whole body feeling Joy. Does it feel like a floating balloon or boat, buoyant against the winds of adversity? Are you a light fluffy cloud floating in the sky way above the Earth? Use your imagination to allow your mind to expand and feel the good emotions of Joy.
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Have a Mindful Laugh
This is a swear-word filled meditation and it is X rated, NOT suitable for children’s ears. I am including it here because I hope it helps you laugh and let go of some of the tension in your life. Cancer is hard! It’s ok to throw a few swear words at it every now and then. F*ck That: An Honest Meditation. Again Do NOT listen to this around children. Please put your noise cancelling headphones on, smile and breathe through it.
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Dance Through All the Emotions
When all else fails, put your song on. You know, that song that gets you out of bed on tough mornings. Make it LOUD. Shake your booty and put your hands up to the sky. This is joy. We can find joy in movement. Praise is joy. So flip your flippin’ chemo curls around, laugh, cry, rage, and shake whatever accessory body parts we still have because we are here and we will keep dancing. And if you can’t dance, let’s fist bump in the air, because, sister, we woke up today.
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Express Your Gratitude
Start a gratitude journal. Having a gratitude journal improves sleep and lowers blood pressure. Write down one thing a day that you are grateful for, even when life is awful. Embrace gratitude in large and small things. Here are a few examples. During a painful surgical infection: “I am grateful there are antibiotics and healers that can help me.” When given a poor prognosis: “Even though this diagnosis is rare and scary, I am grateful that researchers have a treatment algorithm and special centers for this rare cancer and that they’ve helped other people like me before.” After discovering a genetic mutation in a cancer predisposing oncogene: “I am grateful that there is a research center investigating my genetic mutation, that there is a medication to target it, and I’m grateful for 1 healthy non-mutated copy of the gene.” When everything tasted terrible and metallic during chemotherapy: “Thank God for lemons, they make water taste so much better!” And then sometimes all you can do is laugh, “Mama made a LOT of lemonade that summer.”
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Expressing gratitude toward others has more benefits for the one sharing the gratitude than the one receiving it, as it can prevent depression and make you feel better. Every day, write a note, email, or text expressing your gratitude to a person in your life and share it with them.
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Give Yourself a Prescription for Play!
Try to incorporate play into your daily life. Live in the moment (put down all devices and don't worry if your life is perfectly Instagrammable), be spontaneous, and live outside of your ordinary. Find what you already like to do and inject some playfulness and fun into. Do you like to build things? Grab some Legos or make a sandcastle. Did you like to play dress up as a child? Wear a tutu, strum a guitar, and lip synch while you organize your closet. Do you like to play music? Shake a tambourine or play a steel drum. Add some competitive playfulness to a date night by having a Nerf gun contest with your partner. Get creative with bubbles, grab your rain boots and splash in a puddle, put on snow pants and make a snow angel. Create a scavenger hunt for your next walk around the park. I give you permission to be as silly and youthful as you desire. Dance like nobody's watching!
Books on Joy and Emotion
The Book of Joy: Lasting Happiness in a Changing World by His Holiness Dalai Lama and Archbishop Desmond Tutu with Douglas Abrams. This book is a telling of the meeting of these two friends who just happen to be men of great faith as they gather to celebrate the Dalai Lama’s 80th birthday. The book details the nature of joy, obstacles to joy, and the eight pillars of joys as told through the duo’s challenges as a political refugee, leader against the oppression of apartheid, and cancer patient, and how they have found and cultivated joy despite these unimaginable hardships. The final section of the book contains Joy Practices, and invaluable collection of meditations, journaling prompts, and prayers to help the reader remove obstacles to joy and embraces the pillars of joy. In their own words, “Lasting happiness cannot be found in pursuit of any goal of achievement. It does not reside in fortune or fame. It resides only in the human mind and heart, and it is here that we hope you will find it.”
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The Life-Changing Magic of Tidying Up: The Japanese Art of Decluttering and Organizing by Marie Kondo - Tidying expert Marie Kondo recommends removing things that no longer serve a purpose in your life, allowing you to embrace the things that are truly important. Time is the only true currency, and our objects end up owning us if we do not curate them mindfully. This philosophy goes so much beyond just objects. Letting go of nonfunctional or painful relationships, stressors, trauma and free the precious storage space in your mind, body, heart, and soul. In one part of the book, she speaks about bras that no longer spark joy flying out of the closet. 6 months after I read that passage, I no longer had a need for bras in my closet since I went flat from a double mastectomy. Life changes, things we used to need no longer serve us. Feel the emotions, honor and thank the object, let them go, and breathe into the new space in your life.
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The Gratitude Diaries: How a Year Long Looking on the Bright Side Can Transform Your Life by Janice Kaplan This book is a year long experiment for journalist Janice Kaplan on mindfully and purposefully embracing gratitude every day in various aspects of the author’s life: marriage and love, parenting, money, career, stuff, heath, coping, caring, connection. Each chapter focuses on a different source of gratitude as she explores the topic with experts learning about the benefits of choosing gratitude. The chapters that resonated the most for me were Chapter 9 on “Vitamin G” where she elaborates on health benefits and Chapter 12 on “Making Bad Times Better” on finding gratitude despite terrible life circumstances.
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Atlas of the Heart: Mapping Meaningful Connection and the Language of Human Experience by Brené Brown is an exploration of the most common human emotions (87 to be exact) that she categorizes, defines, and illustrates. By reading it, I found words and explanations for emotions that I was feeling but didn't fully comprehend. Her work is a beautiful dictionary of the language of our hearts and so important in understanding ourselves and our interactions with others.
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Happier Hour: How to Beat Distraction, Expand Your Time, and Focus on What Matters Most by Cassie Holmes is a optimization of your time to create that you truly want. Holmes is UCLA professor of happiness so she examines how to savor and optimally spend your time, avoid distractions, and provides simple tools to help implement changes in your day.
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Delve Deeper
Fujiwara Y, Okamura H. Hearing laughter improves the recovery process of the autonomic nervous system after a stress-loading task: a randomized controlled trial. Biopsychosoc Med. 2018 Dec 21;12:22. doi: 10.1186/s13030-018-0141-0. PMID: 30598694; PMCID: PMC6302464.
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Bennett MP, Zeller JM, Rosenberg L, McCann J. The effect of mirthful laughter on stress and natural killer cell activity. Altern Ther Health Med. 2003 Mar-Apr;9(2):38-45. PMID: 12652882.
Liu Y, Tian S, Ning B, Huang T, Li Y, Wei Y. Stress and cancer: The mechanisms of immune dysregulation and management. Front Immunol. 2022 Oct 5;13:1032294. doi: 10.3389/fimmu.2022.1032294. PMID: 36275706; PMCID: PMC9579304.
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McGregor BA, Antoni MH, Boyers A, Alferi SM, Blomberg BB, Carver CS. Cognitive-behavioral stress management increases benefit finding and immune function among women with early-stage breast cancer. J Psychosom Res. 2004 Jan;56(1):1-8. doi: 10.1016/S0022-3999(03)00036-9. PMID: 14987957.
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Fawzy FI, Kemeny ME, Fawzy NW, Elashoff R, Morton D, Cousins N, Fahey JL. A structured psychiatric intervention for cancer patients. II. Changes over time in immunological measures. Arch Gen Psychiatry. 1990 Aug;47(8):729-35. doi: 10.1001/archpsyc.1990.01810200037005. PMID: 2143062.
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Fawzy FI, Fawzy NW, Hyun CS, Elashoff R, Guthrie D, Fahey JL, Morton DL. Malignant melanoma. Effects of an early structured psychiatric intervention, coping, and affective state on recurrence and survival 6 years later. Arch Gen Psychiatry. 1993 Sep;50(9):681-9. doi: 10.1001/archpsyc.1993.01820210015002. PMID: 8357293.