Community
Let's Get Together and Feel Alright
Humans are social beings and from the moment we take our first breath we rely on others to be held, fed, guided, encouraged, and picked up when we fall. One cannot exist alone. Help from others is even more important when we are sick with cancer. A community is a group of people bound by commonalities. These ties that bind may be familial, circumstantial, social, geographic, philosophical, professional or spiritual, and the social support of these connections generates powerful healing benefits.
Research has shown that people with more social connections live longer and are less likely to get cancer. One study found that persons lacking social ties and community were more likely to die than their connected peers, regardless of socioeconomic status, smoking status, alcohol consumption, obesity or physical activity. Another study of breast cancer patients found that women with fewer sources of support had twice the breast cancer death rate than those with a higher number of sources. A study on young women with breast cancer found that increasing social support after diagnosis reduced risk of dying by 70% in comparison to patients whose social support stayed the same or decreased during cancer treatment.
How do our social connections and receiving love physiologically create these powerful benefits in our body? Supportive interactions, feeling loved, and healing touch cause the release of hormones oxytocin, dopamine, serotonin, and endorphins. Oxytocin is the love or cuddle hormone, and it is released when we hug a loved one, hold a baby or caress a pet. It is also released with exercise training. It promotes health by decreasing stress hormone cortisol, lowering blood pressure, boosting the immune system, and is anti-inflammatory and antioxidant. Oxytocin is released during lactation and there is correlation between longer duration of breast feeding (often involving multiple children) and decreased risk of breast and uterine cancer. The exception to the protective effect of breast feeding and cancer is Inflammatory Breast Cancer. It has been shown in breast cancer patients that women who breast feed for a longer duration (greater than 12 months) were more likely to get Inflammatory Breast Cancer than non-inflammatory Breast Cancer. However, Inflammatory Breast Cancer patients who breast fed for at least 5 months are more likely to have disease free survival at 50 months post treatment than those that didn't. This may be due to tumor microenvironment and breast stem cells.
Oxytocin may play a powerful role in cancer. In breast cancer cell cultures studies, oxytocin inhibits breast cancer cell growth. Oxytocin has also been found to inhibit ovarian cancer cell growth in vitro and higher levels of oxytocin in advanced ovarian cancer are associated with longer survival. In a mouse model of breast cancer, exercise training increased oxytocin levels and decreased breast cancer tumor volume by decreased the P13K/Akt and mTOR cell proliferation pathway. So cancer does really hate kisses and exercise. Oxytocin may be the puppy love cuddle hormone molecule that is the body's own cancer-killing smart bomb.
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We all experience suffering and hardship. We are social beings and we need one another to pick us up when we fall down. When we commune we share ideas, emotions, physical comfort, and tangible objects of affection. In coming together, we realize that we are not alone. No matter how big the burden, we can carry it if share the load.
"Always look for the helpers. There will always be helpers....Because if you look for the helpers, you'll know that There's hope."
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- Fred Rogers
01
Action Plan
Commune with Fellow Survivors
I found my people and voice in adult survivor adventure camps. We hiked mountains, surfed waves, sledded face first, and hugged trees. Group activities (crafting, drumming, yoga, breath work, mindfulness, meditation, etc.) can be very healing when linked to cancer because we can express, feel, and process together in a safe space. Find a cancer support group online or at your local cancer center.
02
Go Find Your People and Connect
What do you like to do? Is it nature, quilting, reading, gardening, sports? Chances are, someone else likes to do what you do too! Find a hiking club, quilting circle, book club, gardening club, or sports team. Embrace Zoom or Face Time!
03
Find a Peer Mentor (aka "Breast Friend)
Having a cancer survivor to help you with the process is very powerful. Find a mentor through your cancer center or support networks that provide peer mentors like Imerman Angels, Sharsheret or After Breast Cancer Diagnosis (ABCD).
04
Ask Your Village for Help
Use online websites to update family members, coordinate rides and household tasks, and create a meal train. Try social media or an online health journal like Caring Bridge. LotsaHelping Hands allows you to coordinate rides, meals, household tasks and appointments on a calendar. Save the important jobs like driving your children to activities for those closest to you. Meal Train and Take Them a Meal allow you to create an online meal train. Be VERY specific about what your needs are. If you are on a particular diet or don't want your children having sweets every night with dinner, say so. People want to help! The wise folks at an organization that helps families facing cancer called Bright Spot Network came up with a fantastic list of ways you can ask people for help for when they say, "How can I help?" This list is helpful for anyone, not just those with children.
Delve Deeper
Berkman LF, Syme SL. Social networks, host resistance, and mortality: a nine-year follow-up study of Alameda County residents. Am J Epidemiol. 1979 Feb;109(2):186-204. doi: 10.1093/oxfordjournals.aje.a112674. PMID: 425958.
Reynolds P, Boyd PT, Blacklow RS, Jackson JS, Greenberg RS, Austin DF, Chen VW, Edwards BK. The relationship between social ties and survival among black and white breast cancer patients. National Cancer Institute Black/White Cancer Survival Study Group. Cancer Epidemiol Biomarkers Prev. 1994 Apr-May;3(3):253-9. PMID: 8019376.
Chou AF, Stewart SL, Wild RC, Bloom JR. Social support and survival in young women with breast carcinoma. Psychooncology. 2012 Feb;21(2):125-33. Epub 2010 Oct 20. PMID: 20967848; PMCID: PMC3036767. DOI: 10.1002/pon.1863
Carter CS, Kenkel WM, MacLean EL, Wilson SR, Perkeybile AM, Yee JR, Ferris CF, Nazarloo HP, Porges SW, Davis JM, Connelly JJ, Kingsbury MA. Is Oxytocin "Nature's Medicine"? Pharmacol Rev. 2020 Oct;72(4):829-861. PMID: 32912963; PMCID: PMC7495339. DOI: 10.1124/pr.120.019398
Ito E, Shima R, Yoshioka T. A novel role of oxytocin: Oxytocin-induced well-being in humans. Biophys Physicobiol. 2019 Aug 24;16:132-139. PMID: 31608203; PMCID: PMC6784812. DOI: 10.2142/biophysico.16.0_132
N. Mejri, H. El Benna, H. Rachdi, S. Labidi, H. Boussen. Long duration of breastfeeding is Associated to Inflammatory Breast (IBC) Cancer [Abstract]. Annals of Oncology. 2019: May; 30(Suppl 3): iii22.
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Stecklein SR, Reddy JP, Wolfe AR, Lopez MS, Fouad TM, Debeb BG, Ueno NT, Brewster AM, Woodward WA. Lack of Breastfeeding History in Parous Women with Inflammatory Breast Cancer Predicts Poor Disease-Free Survival. J Cancer. 2017 Jul 1;8(10):1726-1732. doi: 10.7150/jca.20095. PMID: 28819368; PMCID: PMC5556634. DOI: 10.7150/jca.20095
Alizadeh AM, Heydari Z, Rahimi M, Bazgir B, Shirvani H, Alipour S, Heidarian Y, Khalighfard S, Isanejad A. Oxytocin mediates the beneficial effects of the exercise training on breast cancer. Exp Physiol. 2018 Feb 1;103(2):222-235. Epub 2017 Dec 25. PMID: 29143998. DOI: 10.1113/EP086463